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Critical considerations for engaging in inclusive health research with individuals with intellectual disability

Por: Bobbette · N. · Hamdani · Y.

Commentary on: Schwartz, AE, Kramer, JM, Cohn ES, et al. "That Felt Like Real Engagement": fostering and maintaining inclusive research collaborations with individuals with intellectual disability. Qual Health Res 2019;30:236–49. doi: 10.1177/1049732319869620.

Implications for practice and research

  • Individuals with intellectual disabilities (ID) should be involved in co-producing research and evaluating services related to their health and healthcare.

  • Swartz and colleagues’ conceptual model provides valuable insights into factors that enable inclusive research collaborations with individuals with ID and can be used to inform future inclusive health research.

  • Context

    Including the perspectives of individuals with ID in health research and service evaluation is essential to the delivery of high-quality, person-centred healthcare and research that is accessible and reflective of the needs of this group. Inclusive research (IR) is a collaborative approach for working with people with disabilities.1 Guidelines have been specifically developed to support...

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