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Indicators for effective glaucoma care coverage in adults: protocol for a scoping review

Por: Matayan · E. Y. · Burn · H. · Gordon · I. · Evans · J. · Toews · I. · Ramke · J. · Burton · M. J. · Philippin · H. · Mtuy · T. · Hu · V. H.
Introduction

Glaucoma is the leading cause of irreversible blindness worldwide and the number of people with glaucoma is expected to increase to more than 112 million by the year 2040, making it a disease of public health interest. However, there is no consensus on public health indicators to monitor glaucoma care coverage. This scoping review aims to summarise published indicators for monitoring effective glaucoma care coverage globally, focusing on care needs, use of care services and outcomes achieved.

Methods and analysis

We will include studies that report the development and use of public health indicators for effective glaucoma care coverage in patients aged 18 years and older. Studies published from 1 January 2000, in all languages, will be included, provided they can be accurately and easily translated into English using Google Translate. Searches will be conducted by an information specialist on MEDLINE, Embase, Global Health and CENTRAL in the Cochrane Library. Two reviewers working independently will screen the search results, select studies for inclusion and extract data; any disagreements will be discussed with or resolved by a third reviewer. Data will be presented in tabular form, followed by a narrative synthesis based on the review objectives.

Ethics and dissemination

Ethical approval is not required as the review will use published data. Results will be published in a peer-reviewed journal, and summarised results will be available and contribute to the development of standardised glaucoma care indicators.

Registration

OSF registration on 19 May 2025: https://osf.io/zsyw9/

Digitalisation of the guideline registry of the Association of Scientific Medical Societies in Germany for an open, guideline-based, trustworthy evidence ecosystem (Dissolve-E): a protocol of a before-after study with different user groups

Por: Nothacker · M. · Stegbauer · C. · Burckhardt · M. · Nink-Grebe · B. · Eisele-Metzger · A. · Meerpohl · J. · Mueller · I. · Kopp · I. · on behalf of the Dissolve-E study group · Litzkendorf · Knizia · Meyer · Kliemannel · Broge · Toews · Huneke · Bucher · Dincklage · Lichtner · Sta
Introduction

Internationally, the vision of a ‘Digital Trustworthy Evidence Ecosystem’ is being pursued with clinical practice guidelines (CPGs) as one element of such a system. Consequently, CPGs and CPG repositories need to be digitalised.

Methods and analysis

The objective of this prospective, before-after study is to evaluate the impact of digitalising a quality-assured CPG registry using the international data format standard ‘Fast Healthcare Interoperability Resources’ (FHIR). This includes the architecture of the registry, the format of individual guidelines and application programming interfaces to import and export CPG content. The study is guided by a scoping review.

The primary outcome is the usability of the digitalised CPG registry and CPG content for different user groups comprising CPG developers, CPG administrators, health care professionals and patients—including at the point of care in in- and outpatient settings—and technical professionals as users of CPG content in digital applications.

For the before-after comparison, semi-quantitative (surveys) and qualitative (focus groups) methods are applied. All user groups will be involved in a baseline analysis to assess user expectations and technical requirements. According to the results, the digitalised guideline registry will be implemented. The intervention comprises the testing of the digitalised registry with guideline content by all user groups. Analysis of outcomes will include formative and summative evaluation. Final results and further research needs will be discussed in a World Café with all stakeholders.

Ethics and dissemination

The Ethics Committee of the Berlin chamber of physicians, in accordance with its code of conduct §15 section 1 (Eth-KB-24-11) confirmed that no ethical approval is needed for this study. The study is registered in the German Clinical Trials Registry (No: DRKS00034111). Results will be presented at national and international conferences, published in peer-reviewed journals and on the website of the funding institution.

Trial registration number

German Clinical Trials Registry (No: DRKS00034111).

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