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What are the core features of stroke care that support well-being? A qualitative study from the perspectives of people with stroke, whanau and stroke care providers in Aotearoa New Zealand

Por: Bright · F. · Ibell-Roberts · C.
Objectives

To identify the core attributes of quality care that supports well-being from the perspectives of those who access and provide stroke services.

Design

Qualitative Interpretive Description study design involving in-depth semistructured individual and group interviews and analysis using journey mapping and conventional content analysis.

Participants

24 people with stroke, 13 family/whānau members and 34 healthcare professionals located throughout New Zealand.

Setting

Participants were recruited through health services, stroke support organisations and professional networks. Interviews were completed in person at people’s homes or workplaces or on an online videoconference.

Results

Analysis generated a quality framework of domains. High-quality care that supports well-being after stroke in Aotearoa: supports people through uncertainty; fosters a sense of belonging; prioritises relationships and connecting ‘as people’; attends to the emotional aspects of stroke; centres people’s preferences and supports people to have choice and control; honours Māori knowledges and practices; responds to the strengths and needs of friends and whānau; and attends to people’s holistic long-term well-being.

Conclusions

This study offers a framework for considering holistic stroke care that supports areas of need not consistently addressed in stroke services. This framework can help structure practice and policy and can underpin future research in well-being.

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