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Using 'research cafes as a proof-of-concept model for engaging minoritised communities in UK health research: a mixed-methods feasibility study in South West London

Por: Kurade · S. S. N. · Heffernan · C. · Curran · N. · Lelliott · Z. · Milocco · S. · Ocloo · J.
Objective

This proof-of-concept study explored the feasibility and acceptability of research cafés as a community-based model to engage racially minoritised communities in health research, with a focus on mental health.

Design

Adopting a community peer research approach, a research team led by researchers from racially minoritised backgrounds, partnered with four voluntary organisations to conduct four research cafés. A mixed-methods feasibility design combined descriptive quantitative questionnaire data with thematic analysis of discussion notes to evaluate the impact of these cafés in South West London.

Setting

The study took place in Wandsworth, Kingston, Croydon and Sutton, in community venues provided by the voluntary organisations.

Participants

A total of 75 participants from racially minoritised backgrounds attended the sessions. Participants were intentionally selected based on age, ethnicity, location, mental well-being experiences and willingness to engage in mental health research.

Main outcome measures

Quantitative data were collected on participant attendance, demographics and feedback. Qualitative data captured participant perceptions and experiences related to healthcare and research.

Results

The study took place between October 2023 and March 2024. Out of the 112 individuals who registered, 75 people attended with 74 contributing to the analysis (excluding one on the day sign-up). Participants were predominantly Asian/Asian British (62%) and Black/Black British (31%). All participants reported feeling comfortable and respected. Understanding of research improved for 96% and 95% expressed interest in further research involvement, most commonly the idea of joining a peer research network (64%). Participants also highlighted a need for training in research methods and communication skills for ongoing involvement. Five main themes emerged from the café discussions: (1) systemic barriers to accessing safe healthcare and mistrust of UK healthcare systems; (2) the need for cultural competence and sensitivity in healthcare and research; (3) research as a positive step for change; (4) barriers to research participation and (5) the importance of incentives and feedback for research participation.

Conclusions

Preliminary findings suggest that diverse and inclusive community-based partnerships are the basis for developing research cafés as a feasible and acceptable model for engaging racially minoritised communities in health research. They complement existing participatory approaches by creating inclusive, peer-facilitated spaces that build trust, improve awareness and generate high intention for future involvement and participation. Future studies are needed to test the model’s scalability across different geographic and demographic contexts and evaluate its long-term impact on research literacy, participation and equity.

Understanding and improving responses to suicidality for Department of Veterans Affairs clients in Queensland: a data linkage study - project protocol

Por: Meurk · C. S. · Janca · E. · Oltvolgyi · C. · McKay · D. · Lane · J. · Wallace · D. · Khoo · A. · Waterson · E. · Heffernan · E.
Introduction

This project aims to comprehensively examine the incidence of suicidality, individual and population characteristics, and health pathways, for a cohort of Australian veterans using linked administrative data.

Methods and analysis

The cohort will comprise veterans who are clients of the Department of Veterans’ Affairs (DVA) residing in Queensland between 1 January 2017 and 31 December 2022. People currently serving in the Australian Defence Force, Australian Federal Police personnel, other DVA clients who are not veterans (eg, eligible dependents), and clients currently known to DVA who have requested that their data not be disclosed for research will be excluded. This cohort will be linked to DVA administrative data, the Queensland Hospital Admitted Patients Data Collection (QHAPDC), Queensland Hospital Non-Admitted Patients Data Collection, Emergency Data Collection (EDC), Consumer Integrated Mental Health and Addiction Application (CIMHAA), Queensland Death Register, National Death Index, Medicare Benefits Schedule, Centrelink (Data Over Multiple Individual Occurrences) database and Pharmaceutical Benefits Scheme. These data will be linked for a period of at least 1-year preindex and postindex contact with DVA, such that the entire study period is expected to encompass at least 1 January 2016 to 31 December 2023.

Ethics and dissemination

This study received ethical approval from the Departments of Defence and Veterans’ Affairs Human Research Ethics Committee (HREC; Project ID: 556-23), and the Australian Institute of Health and Welfare HREC (Project ID: EO2024/1/1461). This project also received Public Health Act approval (File reference: PHA 556-23). The project was ratified by the University of Queensland HREC (Project ID: 2024/HE002153). The findings of this project will be disseminated via a publicly available report, presentations and peer-reviewed publications.

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