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Children's and young people's experiences of expressing their views and having them heard in health care: A deductive qualitative content analysis

Abstract

Aim

To gain an understanding of children's experiences of expressing their views and having them heard in Australian healthcare settings.

Design

Child-centred qualitative research. A deductive qualitative content analysis was undertaken.

Methods

Data were collected from 20 Australian children and young people between the ages of 7 and 18 years old using the ‘draw, write and tell’ method.

Results

Children's experiences of ‘space’ and ‘voice’, and therefore the opportunity to express their views in health care were, in the main, positive. At the same time, their experiences of ‘audience’ and ‘influence’, the situations in which those views are given due weight, were overwhelmingly described as negative.

Conclusion

Australian paediatric health services appear to have responded to calls to provide children with the opportunity to express their views and thus are delivering on the elements of ‘space’ and ‘voice’, whereas the realisation of ‘audience’ and ‘influence’ has some way to go. Due weight is not always given to children's views.

Implications for the Profession and/or Patient Care

The Lundy model can be used to facilitate a better understanding of the concept of voice, and the responsibility of health organisations in implementing the rights of children and young people, as articulated in Article 12.

Impact

Children and young people have a right to express their views and have them heard in health care, but their experiences in Australian health care are unknown. While children's experiences of expressing their views in health care were mostly positive, their views are not always taken seriously or given due weight. This research impacts child health professionals in Australia and internationally.

Reporting Method

The study is reported using the Standards for Reporting Qualitative Research (SRQR).

Patient or Public Contribution

Members of the Youth Advisory Council of two tertiary children's hospitals were consulted and invited to become members of the research team.

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