To explore and compare patients' and healthcare professionals' experiences of communication during hospitalisation for neurological diseases.
Effective communication is essential for establishing strong relationships between patients and healthcare professionals, thereby ensuring patient-centred care that respects individual values and preferences. Neurological patients face additional communication challenges due to cognitive and motor deficits, such as speech difficulties and delayed cognitive processing. Limited research has investigated how both patients and healthcare professionals experience communication in this context.
An explorative, qualitative design was applied within a hermeneutic framework inspired by photo-voice methods.
Data were obtained through interviews with patients (n = 12), one focus group discussion with healthcare professionals (n = 10) and six additional interviews with healthcare professionals (n = 6). Interviews were combined with photographs taken during the interviews. Data were analysed using reflexive thematic analysis, and the COREQ guideline was applied.
The analysis revealed a main theme: The core of connected care, encompassing three subthemes: Guided alignment, A changing environment and Human before patient. These themes created the foundation for effective, compassionate and humanised care. Participants metaphorically compared this to an aquarium, emphasising that, like an ecosystem, effective communication requires balance between alignment, environment and humanity. This main theme represents the quality of communication between patients with cognitive challenges and their healthcare providers.
This study provides insight into the experiences of communication from both patients and healthcare professionals. Effective communication is important to manage treatment and engage patients in care.
Improving communication, promoting shared decision-making and enhancing the implementation of person-centred care are key strategies for increasing patient outcomes and satisfaction.
None.
To explore the healthcare experiences and needs of older adults living with HIV in Sweden.
A phenomenological study using qualitative thematic analysis.
Data were gathered through semistructured qualitative interviews and analysed using thematic analysis. A purposive sample of individuals ageing and living with HIV was recruited for this study.
A total of 22 participants aged 65 years and older, with a mean age of 75 years, participated in the study. Living with HIV meant a need to rely on consistent healthcare and treatment over the course of one's lifetime. The experiences of older adults were described under four themes: relying on access to health care, desiring involvement and shared decision-making, the importance of trust and confidentiality and experiences of stigma in healthcare visits.
Living and ageing with HIV involved recurring exposure and vulnerability in healthcare encounters, and experiences of being exposed to HIV-related stigma, especially outside HIV clinics. Continuity and being seen as a person in healthcare encounters were important. Enhancing HIV knowledge alongside fostering supportive attitudes and approaches of healthcare professionals is critical for ensuring high-quality and nondiscriminating health care.
Meeting the needs of older adults living with HIV requires a person-centred approach, including active involvement and shared decision-making between patients and healthcare providers.
This study describes the healthcare experiences and needs of older adults, aged 65 years and older, living with HIV, a population that is not typically investigated in qualitative research. Living and ageing with HIV means a vulnerability where the attitudes of professionals and the active involvement of the patient become significant for quality care. The findings can help with the implementation of policies and practices for the care of older adults living with HIV.
The Consolidated Criteria for Reporting Qualitative Studies (COREQ) was used.
Patient representatives were involved in discussions on data collection and the development of the interview guide.
To identify and map the evidence on interventions facilitating the involvement of relatives of patients with an acquired brain injury (ABI) or a malignant brain tumour (MBT).
An ABI or a MBT are severe diseases that have profound impact on the lives of patients and their relatives. The well-being of the patient may be deteriorated, and relatives may experience a new role and changing caregiving tasks. Involvement of relatives seems essential, and there is a need for identifying interventions facilitating the involvement.
Scoping review.
The Joanna Briggs Institute methodology was used in this review and the review was reported in accordance with the PRISMA extension for scoping reviews.
The literature search was conducted in MEDLINE, Embase, CINAHL and Cochrane Library. Reference lists of included studies, Google Scholar and Web of Science were also searched.
In total, 46 studies were included of which 36 (78%) involved patients with stroke. Median duration of study interventions were 8 weeks, and nurses were involved as providers of the intervention in 23 (50%) studies. Thirty (65%) studies used a multicomponent intervention. Thirty-five unique outcomes were identified using 60 unique outcome measurements.
Interventions facilitating the involvement of relatives differed importantly in key characteristics of study interventions, and in relation to the context in which they were used. There was no consensus regarding choice of outcomes and outcome measurements. Our results highlight the complexity of interventions in this field.
To our knowledge this is the first scoping review examining interventions facilitating the involvement of relatives of patients with an acquired brain injury or a malignant brain tumour. This review suggests a clear definition of ‘involvement’ in future research and there is a need of development of a core outcome set for use in interventions facilitating the involvement.
The scoping review was reported in accordance with the PRISMA extension for scoping reviews.
The authors decided to undertake this scoping review without patient and public contribution. However, the protocol was published prior to review conduct and available to the public but we did not receive any comments on it.
To explore how chronic illness transforms the self when living with and managing chronic illness and what this means for their self and identity. We also discuss how people with chronic conditions could be supported by healthcare professionals to manage illness in daily life.
Self-management recommendations from health care are commonly based on a biomedical understanding of the disease. People's experiences of how a condition affects them and adequate support are crucial for their outcomes in daily self-management.
A narrative review.
A systematic search was undertaken during January 2021 across the databases MEDLINE, CINAHL, PsycINFO, Soc INDEX and Philosopher's Index. A quality appraisal of articles was performed. Our analysis was inspired by qualitative content analysis. The PRISMA Checklist 2020/EQUATOR guidelines was used to report the study.
Twenty-eight peer-reviewed qualitative empirical articles focusing on self in a variety of chronic illnesses with relevance to nursing published from January 2010 to December 2020 were included. The main theme, Developing from an uncertain existence to meaning and wholeness, was built up by the five themes: Walking on an unstable ground; Being stalemated; Being involved with others for better or worse; Searching for meaning; and lastly, Modifying self and integrating a new way of living.
The results illuminate experiences that seldom are prioritized but need to be addressed by health professionals. Such experiences are oriented more towards the existential self rather than medical issues, why it is important to go beyond the medical lens.
This is important knowledge for nurses aiming to support people with chronic illnesses. Nurses supporting people in self-management need to be aware that by teaching and encouraging people to revise their daily habits, they also work on the boundaries of their self-concept.
No patient or public contribution.